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MyFSHD

MyFSHD

Veröffentlicht: 2026-01-15
© Peter L Jones, PhD
MyFSHD - QR Code
107 Folgen
Audio
Anhören auf Apple Podcasts
107 Folgen
Audio
Anhören auf Apple Podcasts
Veröffentlicht: 2026-01-15
© Peter L Jones, PhD
Aktuelle Folge
Our takes on recent (~Jan 2026) FSHD clinical trial updates

Our takes on recent (~Jan 2026) FSHD clinical trial updates

"So, Mr Tipton, how could it take you five minutes to cook your grits when it takes the entire grit-eating world twenty minutes?" We discuss the initial Epicrispr Biotech press release pertaining to their EPI-321 phase 1/2 clinical trial and the big pic
Länge: 46:01
"So, Mr Tipton, how could it take you five minutes to cook your grits when it takes the entire grit-eating world twenty minutes?" We discuss the initial Epicrispr Biotech press release pertaining to their EPI-321 phase 1/2 clinical trial and the big picture science behind the RESTEM phase 1/2 clinical trial in progress and the Scholar Rock upcoming phase 2 clinical trial.
Folgen-ID: 1000745293660
GUID: 5348104f-219e-4cbe-82bc-c509d2a9e5df
Erscheinungs­datum: 15.1.2026, 14:51:37

Beschreibung

MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.

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